The Rare Disease Action Forum (RDAF) will host a multi-stakeholder workshop on post-marketing registries for rare diseases on 21 September 2023 in Basel.

SFL’s Senior Vice-President Shayesteh Fürst-Ladani, in her functions as RDAF President, will open the event and present the association and its activities to improve access to treatment in Switzerland.

SFL’s team members Nathalie Schober-Ladani (Senior Director Public Affairs & Regulatory Intelligence), Camille Saint-Genis (Senior Manager Public Affairs & Regulatory Intelligence) and Adrian Sutter (Manager Public Affairs & Regulatory Intelligence) will co-moderate the workshop.

The event will gather representatives from the rare disease community, including patient organizations, industry, healthcare providers, public authorities and academia, to discuss the framework for the set up and management of the registries.

Registration is open – the workshop will be held in German.